Referral Pause for Hypermobility Spectrum Disorders
Our specialists in Genetics are managing a very high volume of patient referrals with Hypermobility Spectrum Disorders, including Ehlers Danlos Syndrome, and staffing for this diagnosis is currently down. No new referrals for this program will be available for the next several months. The attached resources can be used to guide and counsel patients for whom hypermobility is a concern. The Community Practice Support Tool provides more specific guidance for providers. Additionally, please access the links below for additional support. We will provide updates and additional options in the Weekly Vitals and upcoming editions of Synapse. The providers at Cincinnati Children’s appreciate your support and patience as we work to address this.
Community Practice Support Tool (CPST) for Ehlers-Danlos: CPST for Ehlers-Danlos
Ehlers-DanlosThe Ehlers-Danlos Society website: The Ehlers-Danlos Society: The Ehlers Danlos Society
2017 EDS International Classification (Ehlers-Danlos Society webpage): 2017 EDS International Classification - The Ehlers Danlos Society : The Ehlers Danlos Society (ehlers-danlos.com)
Assessing Joint Hypermobility (Ehlers-Danlos Society webpage): Professionals - The Ehlers Danlos Society : The Ehlers Danlos Society (ehlers-danlos.com)
EDS and HSD information (Ehlers-Danlos Society webpage): EDS and HSD Info - The Ehlers Danlos Society : The Ehlers Danlos Society (ehlers-danlos.com)
Understanding Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder by Claire Smith (great resource for providers and patients/families): Understanding Hypermobile Ehlers-Danlos Syndrome & Hypermobility Spectrum Disord | rchpublications (redcliffhousepublications.co.uk)